Welcome to Rare Disease Day, which is celebrated the last day of February every year. Today we want to honor all the amazing families who walk daily in the world of "rare", and take a moment to share one family's journey through birth, diagnosis, therapies, and awareness.
"Rare Disease Day is a day where people can see this and realize the hardship of fighting something you know nothing about." - Sumathy Lal
"Nothing about rare diseases is simple - not the diagnosis, not the daily care, not the long term." - Unknown
Rare Disease Day is designed to bring awareness to rare diagnoses and the journey many families face alone or quietly. Today, we hope you will hear the words from a beautiful young mom who faces the world of rare head on, as she searches for answers and understanding.
For more information on rare disease day please visit: https://www.rarediseaseday.org/
For more information on 1p36 Chromosome Deletion Syndrome please visit: http://1p36.com/
Trauma and Big Feelings with Lauren Alvarez
World Down Syndrome Day Part Two - with Charity Cook and Cassie
World Down Syndrome Day Part One - With Charity Cook and Cassie
Rare Syndrome Awareness (CdLS) with Charles Moore - Episode 04
Rare Syndrome Awareness (CdLS) with Charles Moore - Episode 03
Rare Syndrome Awareness (CdLS) with Charles Moore - Episode 02
Rare Syndrome Awareness (CdLS) with Charles Moore - Episode 01
Mindful Self-Compassion with Lauren Alvarez
2023 Prematurity Awareness Month with Kayla Pitts, Mom of 26-Week’er - Part Three
2023 Prematurity Awareness Month with Kayla Pitts, Mom of 26-Week’er - Part Two
2023 Prematurity Awareness Month with Kayla Pitts, Mom of 26-Week’er - Part One
Andrew Lyon’s Lived Experience with ALL
B-Cell Acute Lymphoblastic Leukemia Journey (Part Three) with Jade Campbell
B-Cell Acute Lymphoblastic Leukemia Journey (Part Two) with Jade Campbell
B-Cell Acute Lymphoblastic Leukemia Journey with Jade Campbell
Acute Myeloid Leukemia (Part 2) - Mackenzie Asher’s Journey - with her dad, Jayson Asher
Acute Myeloid Leukemia (Part 1) - Mackenzie Asher’s Journey - with her dad, Jayson Asher
Long Tran with FAITH KIDS for Childhood Cancer Awareness Month
Creative Consequences with Lauren Alvarez
Healing Injured Parents with Jeremy Elledge
Create your
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It is Free
History Storytime - For Kids
Privacy Boys
Nonsensical Show
The Turn of the Screw
Grimms’ Fairy Tales
Dr. Laura Call of the Day
Focus on the Family Broadcast