The ALS Registry is a powerful tool to learn more about who has ALS in the United States and develop appropriate research proposals with different populations of people. In order for the Registry to work, people with ALS need to participate in a series of surveys. In this podcast, Jen Hjelle, the Executive Director of The ALS Association MN/ND/SD Chapter talks about their outreach to ALS families for the registry in more rural areas of the country and why they see the Registry as a valuable tool to end ALS.
Learn more about the fight against ALS, research, and participating in advocacy for initiatives like the Registry at www.alsa.org
Talk to Defeat ALS with Lenny and Jessie
Talk to Defeat ALS - ALS Focus
Talk to Defeat ALS Jim Doyle
Talk to Defeat ALS - Conversation with Steve Spaulding on ALS and COVID-19
Talk to Defeat ALS - Nurse Erica Smith
Talk to Defeat ALS - Social Worker MaryBeth Tomczak
Talk to Defeat ALS Wendy Barnes- Social Work Month
Talk to Defeat ALS - Social Worker Maryann Jones
Talk to Defeat ALS Social Workers Melissa Anne and Jayne
Talk to Defeat ALS - Frank Esterle with Home Helpers
Talk to Defeat ALS - Clinical Conference Part 2 with Melissa and Anne
Talk to Defeat ALS - Report from the 2018 Clinical Conference Part 1
Talk to Defeat ALS - Scott Smith and Virtual Reality
Talk to Defeat ALS - 5 Minute Tip - Scooters and ALS
Talk to Defeat ALS - 5 Minute Tip Tech and Support Groups
Talk to Defeat ALS - 5 Minute Tip: Using a Trilogy Device
Talk to Defeat ALS - 5 Minute Tip: Calling for Help Outside the Home
Talk to Defeat ALS - 5 Minute Tip: Cell Phone Use for People with Hand Difficulties
Talk to Defeat ALS - Social Media
Talk to Defeat ALS - 5 Minute Tip: Yes, No, Maybe
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