E131: The Pain of Baby Loss & The Strength to Keep Going - Sinead McIvor’s Story

2025-03-10

Losing a child is every parent’s worst nightmare. An unimaginable pain that forever changes life as you know it. Sinead McIvor knows this heartbreak all too well. In this episode, Sinead shares the story of her beautiful baby boy, Frankie James, who was born in 2016, and diagnosed with Nemaline Myopathy.She takes us back to those early days of grief, the overwhelming sorrow, and the fear that she would never smile again. But she also speaks about the incredible support she received, including Perinatal Psychology Services at the Royal Victoria Ho...

Losing a child is every parent’s worst nightmare. An unimaginable pain that forever changes life as you know it. Sinead McIvor knows this heartbreak all too well.

In this episode, Sinead shares the story of her beautiful baby boy, Frankie James, who was born in 2016, and diagnosed with Nemaline Myopathy.

She takes us back to those early days of grief, the overwhelming sorrow, and the fear that she would never smile again. But she also speaks about the incredible support she received, including Perinatal Psychology Services at the Royal Victoria Hospital, and the steps she took to slowly rebuild her life.

Now, Sinead is using her experience to support others navigating the devastating reality of child loss. She shares heartfelt advice on what truly helps in those darkest moments, how she has learned to take care of herself, and the ways she has found light again.

This episode is a conversation about grief, resilience, and, most importantly, love. If you or someone you know has experienced loss, Sinead’s words may offer comfort and hope.

Links from Episode

Sinead McIvor

LinkedIn:

http://www.linkedin.com/in/sinead-mcivor-4b25391a1

Nemaline Myopathy

https://www.mda.org/disease/congenital-myopathies/types/nemaline-myopathy

Baby Loss Support NI

https://www.nidirect.gov.uk/articles/loss-your-baby

The White Butterfly Foundation

https://thewhitebutterflyfoundation.co.uk/

Sands

https://www.sands.org.uk/