Our Young Onset series begins with a conversation between Matt Dineen, a father of three and husband from Ottawa, Ontario and Jillian McConnell, guest host and Knowledge Mobilization lead with brainXchange. Nine years ago, Matt's wife Lisa was diagnosed with Behavioural variant Fronto-temporal dementia (bvFTD) at the age of 43.
Matt and Jillian discuss what his experience has been like including: how Lisa was diagnosed, the challenges surrounding a diagnosis and symptoms at such an early age, how it impacted him, Lisa and their children (who were ages 12, 10 and 8 at the time) and what strategies and resources Matt found most helpful early on in Lisa's diagnosis and now, years later.
For more information:
"It Started with Oma"
Le rôle important des aidants et des ressources communautaires pour les personnes atteintes de troubles neurocognitifs majeurs.
Esprit en action
Mind over Matter: Game Changer
Circle of Music in Kitchener-Waterloo
L’importance de la communauté
Conversations That Matter: Talking About Dying and Dementia
Les defis de la proche aidance a distance
L’approche par le plaisir
Vivre le moment present et profiter de la vie
Dying & Dementia: Let’s Talk About It
Demystifying Dying: Stories from a Death Doula
Dementia and Indigenous Communities Part 2: A cultural perspective of dementia and dementia care
Taking it to the Streets: Reimagining Dementia
Dementia and Indigenous Communities Part 1: A cultural perspective of dementia and dementia care
Ruth and Maggie’s Story
2SLGBTQI & Dementia:From Research to Action
Modèles novateurs de résidences pour aînés vivant avec un trouble neurocognitif majeur: Conversation avec le professeur Philippe Voyer
Rainbow Wing in LTC and Emotion Based Care for 2SLGBTQ Residents
Les défis de la proche aidance à distance
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