Ep15 Pulse 110: Angel Drive Kick-Off, NORD Summit, Family Caregiver Month, Clinical Trial Journey

The latest in PWSA events and PWS news in research, family support, and advocacy with PWSA | USA's Director of Development, Melanie McDonald, filling in for Carrie. Hear about the launch of our Angel Drive campaign and how you can donate, the latest happenings on Capitol Hill, support for PWS families affected by the recent hurricanes, PWS in adulthood blog series, upcoming family support webinars, workshops, and offerings and Family Caregiver Month, an update on one family's clinical trial journey, the newest TEMPO clinical trial site, ECHO webinar series, and Melanie's mission moment. 

LINKS

https://www.pwsausa.org/angel-drive-2024/

About PWSA | USA's Hope in Action Series

https://www.pwsausa.org/get-involved/share-your-story/

Home - 2025 United in Hope PWS Conference

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Hurricane Relief: info@pwsausa.or​g, or call us directly at 941-312-0400

Events from November 1 – June 24, 2025 – Prader-Willi Syndrome Association | USA

PWSA | USA Advocates for PWS on Capitol Hill and NORD Breakthrough Summit - Prader-Willi Syndrome Association | USA

Workplace Assistance - Prader-Willi Syndrome Association | USA

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Emergency Information Folder - Prader-Willi Syndrome Association | USA

Self-Care for Caregivers - Prader-Willi Syndrome Association | USA

Babysitter and Care Provider Training: Webinar Registration - Zoom

TREND Webinar PWSA

Journaling and Story Sharing Workshop: africke@pwsausa.org

Baseline and Video Interview - Prader-Willi Syndrome Association | USA

TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today

Call for Abstracts: Conference 2025 - IPWSO

Project Echo - Prader-Willi Syndrome Association | USA

Meditation, Mindfulness, and Self-Care - Prader-Willi Syndrome Association | USA