Young Onset Dementia: One family’s story Pt. 2: the children’s perspectives

Jillian McConnell, our guest host, speaks with the Dineen children: Justin, Rebecca, and Peter who were just 12, 10, and 8 at the time of their mom’s diagnosis (9 years ago), about their experiences as younger children learning about their mother’s bvFTD diagnosis and now as teenagers / young adults. They discuss the unique challenges they faced and offer perspectives and strategies that continue to help them as they navigate their mother’s diagnosis and their relationship with her.

Part 1  is a conversation with Matt Dineen, their father.  

For more information: 

• Association for Frontotemporal degeneration: https://www.theaftd.org/
• AFTD support groups in Canada: https://www.theaftd.org/get-involved/in-your-state/canada/
• The Dementia Society of Ottawa and Renfrew County: https://dementiahelp.ca/
• ASO: https://alzheimer.ca/on/en
• brainXchange: https://brainxchange.ca/public/home