Ep. 7 - Dismantling of the Intact Mind

The “intact mind” is an old idea still common in discourse that inside every autistic child – even those with the most severe presentations – is a typical child with a high intellect waiting to be liberated. Author, University of Pennsylvania historian of medicine and mother of a 25-year-old profoundly autistic son, Dr. Amy Lutz joins to discuss her newest book, “Chasing the Intact Mind.” She and Lindsey talk about how the insidious idea of the intact mind gives false hope to parents while marginalizing individuals with profound autism and their caregivers at the greatest levels. Disability service systems are still being predicated on the idea rather than being designed to serve the full spectrum – including the different needs of people with legitimate intellectual disabilities. Intact mind related practices and movements like facilitated communication, “nothing about us without us” and anti-subminimum wage, are leaving the stories of those with profound autism untold and their needs unmet.