A Surgeon’s Fight for His Son: The KCNT1 Epilepsy Story with Justin West

What happens when a world-class plastic surgeon is suddenly pulled into the world of rare genetic epilepsy? In this emotional and eye-opening episode, Tim speaks with Dr. Justin West — a board-certified plastic surgeon, innovator, and the father of Andrew, a child diagnosed with KCNT1 epilepsy, one of the most devastating and rare neurological disorders.

Dr. West shares the remarkable story of how his son’s diagnosis propelled him from the operating room into the front lines of genetic research, global advocacy, and experimental drug development. From launching the KCNT1 Epilepsy Foundation to driving real-world clinical trials, Justin's journey reveals the deep challenges — and urgent hope — in the fight against rare pediatric epilepsies.

 

-------------------------------------------- Interested in being part of this? Please visit our guest invitation page where you can learn more and fill out a brief questionnaire to get started: https://phoenixprosperitypodcast.com/guest It’s going to be enlightening and, most importantly, a lot of fun. I’d love for you to be a part of it!