Rheumy Rounds™ Pilot Episode Episode 14: Office Visit Communication Obstacles
Show Notes: Episode 14 ”Rheumy Rounds™ Pilot Episode Episode 14: Office Visit Communication Obstacles (Part 2)”
00:52 - Tiffany welcomes listeners to the show
01:46 - Listeners may experience Rheumy Rounds episodes out of order
01:59 - Rheumy Rounds started because patients identified a need to better communicate with their rheumatologists
02:32 - Guests this episode include Dr. Alfred Kim and Jerik Leung, who have done research on patient needs and communication barriers
04:18 - Dr. Kim gets most of his information about patient and public perception of diseases from his patients who have been googling their diagnoses
05:45 - Up to 80% of human assumptions are wrong, and most of us base our decisions and behaviors on these assumptions
06:46 - Dr. Kim says google may be misleading for patients and frustrating for their doctors
07:25 - For many physicians, the emotional aspects of the disease aren’t actionable from a clinical perspective.
08:00 - Patients may be on the defensive at the outset of appointments due to previous negative interactions with rheumatologists
09:00 - Learning to advocate for yourself is necessary for patients living with chronic illnesses
11:10 - IFAA conducted a study in 2013 that found that at least 30% of AiArthritis patients experience brain fog within 12 months of symptom onset regardless of diagnosis
11:54 - Very difficult for physicians who have no personal experience with chronic or severe illness to be empathetic with patients because they simply do not understand
12:53 - It’s important for physicians to ask patients to clarify their symptoms if they do not have any personal experience with them
14:18 - Some doctors aren’t comfortable being in a space where they are no longer acting as the expert, so they won’t ask questions to clarify the patient perspective vs the clinical perspective
15:29 - May be easier for physicians to ask questions of patient advocates as opposed to their own patients within an appointment
17:24 - Patients who can describe their own symptoms very specifically and very accurately (without hyperbole) make the most effective communicator with their physician
18:20 - Patients must know their own body and their own symptoms (like where specifically is the pain within a certain joint or what precise motions are more painful than others)
20:12 - Photos, symptom journals, or lists of topics you want to discuss should be sent to your
physician a week before your appointment so they can prepare for the appointment and use
the time most efficiently
22:30 - A proposal to put NYC physicians on Yelp was widely opposed by physicians who did not want patients reviewing them publicly
22:59 - Dr. Kim wanted his Lupus Clinic to be on Yelp because he wants to know what patients are telling each other about their experience
23:29 - HealthGrades is a website that allows patients to review their US-based doctors
26:03 - Mutual trust is critical between the patient and physician
26:53 - Occupational therapy support may increase patient compliance with their treatment plan and help them and their caregivers achieve a better quality of life
28:05 - Physicians may not address complaints from patients that they are not equipped to handle, but they should be able to refer the patient to someone who can help them
28:59 - Most common reasons people “fire” their doctor: they feel unheard or treatments are not
meeting their expectations
30:33 - Both doctors and patients could potentially benefit from training on how to interact positively and productively with each other
32:15 - Rheumatologists, visit us at AiArthritis.org/rheumyrounds to get involved with the show
32:37 - Patients, please visit us at AiArthritis.org/podcast to contribute your thoughts or sign up to be a co-host
Episode 63: COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications
Episode 62: Patient-Reported EULAR2021 Debriefs ... and We're Off!
Episode 61: 2021 Charity Talk
Episode 60: The COVID-19 Blues - It's OK to ask for help
Episode 59: Learned Experiences- Let the Evolution Continue!
Episode 58: Diet, Research, & AiArthritis - an ACR Special Presentation
Episode 57: RheumyRounds Special Airing - COVID-19 & Vaccinations Communication, Education, & Shared-Decision Making
Minisode Special: Decision Making w/ Vaccinations & Special Rheumy Rounds Announcement!
Episode 55: Patients Weigh In What's in a Name - the Spondy Evolution
Episode 54 COVID19 & AiArthritis Special Series: Vaccine questions & mixed messages
Episode 53: FDA Public Meeting Opportunity - Patients "at the table"
Episode 52: An Unprecedented Year in Review
Episode 51: Oh Mama! Special Series Episode 2 - Breastfeeding with AiArthritis Diseases
Episode 50: Grit, Gratitude and Grace: A positive mindset can improve pain and resilience
Episode 49: Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis?
Episode 48: Support: It's not so simple. Diverse needs for difference experiences.
Episode 47: Teamwork makes the dreamwork: AiArthritis WINS Best Team Performance 2020
Episode 46: The "A" Word
Episode 45: This is for all the marbles
Episode 44: Patient-Reported Symptoms - Connecting the dots to improve education
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