EP16 -Looking back at Rare Disease Days past, Community News, and Awareness Days in March

Finally, the day many of us have been waiting for … the 28th of February. Rare Disease Day. 

We all think we know all about Rare Disease Day but let’s take a trip in the Way Back Machine and look at this days modest beginnings.

 

NCBRS 

https://www.facebook.com/ncbrsworldwidefoundation/posts/pfbid02cpbnwheAXvtAw2mjV4ffhVg6Au7ML56emwDAiSQVgSDpUV7CXsGWgPByXE6r8brMl#

 

Willis Family Statement
https://www.theaftd.org/mnlstatement23/

 

"End of Amazon Smile [...]" Global Genes Letter
https://globalgenes.org/blog/end-of-amazonsmile-program-impacts-non-profits/?utm_source=twitter&utm_medium=social&utm_campaign=amazonsm

 

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