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SÅNT ÄR LIVET i Sverige!

SÅNT ÄR LIVET i Sverige!

Education

Alexandra Uusimaki -  Breast cancer survivor, and CEO (volunteer) for a Swedish Breast cancer assoc

Alexandra Uusimaki - Breast cancer survivor, and CEO (volunteer) for a Swedish Breast cancer assoc

2025-01-09
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Sweden's Breast Cancer Association's membership pledge states: "No one should have to face  breast cancer alone." Alexandra Uusimäki, chairperson of the Breast Cancer Association Johanna Gothenburg, Sweden, contributes greatly to ensuring that the pledge is upheld.

Breast cancer is the most common cancer among women in Sweden, affecting over 9,000 individuals annually. The chances of being cured have increased over recent decades. Today, 9 out of 10 women survive breast cancer, largely due to earlier detection and advancements in research. This progress is also thanks to passionate individuals like Alexandra, whose tireless dedication has led to informing thousands of people about how to perform self-examinations on their breasts.

Alexandra's commitment further involves staying updated on new treatments, following international research, and influencing guidelines and decisions as a member of the management team at Sahlgrenska Hospital – the only hospital in Sweden certified at the European level for breast cancer care.

"My most important role is probably to see the bigger picture, to connect our operations with healthcare by informing decision-makers, politicians, and working with companies willing to support us. If not with financial contributions, then for example by providing conference spaces or gym memberships," she says.

Summer 2024 marked ten years since Alexandra was diagnosed with breast cancer. Today, she is cancer-free and dedicates her efforts to helping others who are affected. This is especially evident in her voluntary role as the chairperson of the Breast Cancer Association Johanna Gothenburg, which was founded back in 1979 as one of the first local breast cancer associations in the country.

Through events and communication initiatives, the membership has grown by 17 percent in just under two years since Alexandra assumed the role of chairperson. Today, the association has 720 members.

Alexandra is described as an individual who never gives up in the fight against one of the toughest diseases and who, in her role as a patient advocate at Breast Center West, does not hesitate to fight from a patient perspective. When she was diagnosed herself, she experienced how difficult it was to understand and absorb everything on her own. Now, she is passionate about helping others affected by this deadly disease. She also spreads knowledge that can lead to more cases being detected early, which saves lives.

Alexandra was awarded the title of ELDSJÄL of the Year 2024 at Folkspel's Eldsjäl Gala at Cirkus in Stockholm on Thursday, April 11. Alexandra Uusimäki, being a finalist, received a personal scholarship of 10,000 SEK, an additional 15,000 SEK for winning, and 50,000 SEK towards a specific project.

Swedish

Sveriges Bröstcancerföreningar har ett medlemslöfte som lyder: ”Ingen ska behöva vara ensam med sin bröstcancer”. Alexandra Uusimäki, ordförande för Bröstcancerföreningen Johanna Göteborg bidrar i allra högsta grad till att se till att det löftet efterlevs.

Bröstcancer är den vanligaste cancersjukdomen bland kvinnor i Sverige där drygt 9000 drabbas om året. Möjligheterna att bli botad har ökat de senaste årtiondena. Idag överlever 9 av 10 sin bröstcancer. Mycket beroende på att fler fall upptäcks i tid och att forskningen går framåt. Också tack vare eldsjälar som Alexandra, som med ett outtröttligt engagemang sett till att informera tusentals personer om hur man själv undersöker sina bröst. Hennes engagemang innebär dessutom att hålla sig ajour med nya behandlingar, att följa forskning internationellt, att som ingående i styrgruppen på Sahlgrenska – det sjukhus i Sverige som är certifierat på Europanivå gällande bröstcancer – påverka riktlinjer och beslut.

"Min viktigaste roll är väl att se det stora perspektivet, att knyta ihop vår verksamhet via kontakt med vården, genom att informera beslutfattare, politiker, att bearbeta företag som vill vara med och stödja oss. Om inte i likvida medel exempelvis genom att upplåta konferensutrymmen eller gymkort".

Sommaren 2024 var det tio år sedan Alexandra drabbades av bröstcancer. I dag är hon cancerfri och verkar för att hjälpa andra som drabbas. Inte minst i sin ideella roll som ordförande i Bröstcancerföreningen Johanna Göteborg, vilken startade redan 1979 som en av de första lokala bröstcancerföreningarna i landet. Genom events och kommunikationsinsatser har medlemsantalet ökat med 17 procent på knappt två år och sedan Alexandra tog över som ordförande. I dag uppgår medlemsantalet till 720.

Alexandra beskrivs som en individ som aldrig ger sig i kampen mot den tuffaste av sjukdomar och som inte tvekar i rollen som patientföreträdare i Bröstcentrum Väst att strida utifrån ett patientperspektiv. Då hon själv drabbades märkte hon det svårt i att förstå och ta in allt på egen hand. Nu brinner hon för att hjälpa andra som drabbats av den dödliga sjukdomen. Hon sprider dessutom kunskaper som kan leda till att fler upptäcker sjukdomen i tid, vilket räddar liv.

Alexandra tilldelades priset årets eldsjäl inom kategori hälsa på Folkspels Årets eldsjälsgala på Cirkus i Stockholm torsdagen den 11:e april. Utöver äran får Alexandra Uusimäki som finalist ett personligt stipendium på 10 000 kronor, ytterligare 15 000 kronor i personligt stipendium för vinsten samt 50 000 kronor till ett specifikt projekt.

 

LinkedIn

Alexandras Profile

linkedin.com/in/alexandra-uusimäki-09444566

Facebook (in Swedish)

Bröstcancer - Vikten av tidig upptäckt (45:45min) Conversation style interviewer Fanny Uddman. In addition to Alexandra, the program include Swedens Breast Cancer Organisation’s General Secretary Marit Jenset.

https://www.facebook.com/watch/live/?ref=watch_permalink&v=1070528385080718

 Radio (in Swedish)

Swedens Radio P4 (2024) Brist på läkare – då stryks kontroll efter bröstcanceroperation

 Articles (in Swedish)

Berntsson, J. (2025/2026) Skulle förstora bröst – mot hennes vilja. https://www.expressen.se/gt/skulle-forstora-brost--mot-hennes-vilja/

Bröstcancerförbundet (2024). Alexandra Uusimäki är årets eldsjäl https://brostcancerforbundet.se/aktuellt/alexandra-uusimaki-vinnare-av-arets-eldsjal-inom-kategori-halsa/

 

 

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