Re-Airing: When Patients Create Their Own Medical Binders: A Powerful Way to Get Organized and Feel More in Control (HLOL #262)

Helen is taking a break to recover from back surgery, so we’re re-running some classic episodes. Here’s one from 2019.

Bridget Gaglio PhD, MPH is a Senior Program Officer for the Clinical Effectiveness and Decision Science program at the Patient-Centered Outcomes Research Institute (PCORI). She works to improve communication and dissemination of evidence-based information among patients and their healthcare providers. Gaglio has published papers on patient-centered communication, health literacy, and dissemination and implementation of health interventions. But this podcast isn’t about that. Rather, it’s about experiences and lessons Bridget and Helen each learned as patients.

In this podcast, Helen Osborne talks with Bridget Gaglio about:

• Becoming a patient can happen in a moment, whether from an accident or unexpected diagnosis. Some reasons that communication can be very hard, even for patients who are good readers and savvy about health.
• Why to create your own medical binder and what to include. How such binders (on paper, electronic, or both) can help patients feel empowered and more in control.
• Tips, suggestions, and lessons learned for patients and providers, alike.

More Ways to Learn:

• PCORI’s Advisory Panel on Clinical Effectiveness and Decision Science.
• “Health Literacy—An Important Element in Patient-Centered Outcomes Research,”by Bridget Gaglio, published in The Journal of Health Communication, September 26, 2016.
• “Health Literacy Out Loud podcast, “After Visit Summaries (HLOL #152).”An interview with Alex Federman, MD, MPH. July 1, 2016.

Health Literacy from A to Z: Practical Ways to Communicate Your Health Message, Second Edition (updated 2018),by Helen Osborne. Chapter 5 is especially relevant to this podcast, “Communicating When Patients Feel Scared, Sick, and Overwhelmed.”

Read the transcript of this podcast.

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