A couple of weeks ago CanFASD shared a letter written to a teacher by a student with FASD. I had already reached out to Shana Mohr to interview her, as the Training Coordinator for the FASD Network in Saskatchewan, but was stoked to find out it was her daughter that wrote the letter!
Shana has trained hundreds of professionals, caregivers, and individuals with intellectual disabilities about the complexities of FASD. Through her experiences, she has developed an intimate understanding of the services available for individuals with FASD. Shana believes in the need for more research to fill the gaps in these services and to increase the accessibility for individuals with FASD and their caregivers. Shana is also a member of the Family Advisory Committee with CanFASD.
“Starting my journey, I googled FASD. Google tells you everything that is terrible and negative about FASD and nothing good, so I was pretty scared about it. But that’s when I reached out and connected to other caregivers. Then I shifted my focus and decided: We are not going to live scared anymore. We are going to get educated.”
While Shana does not always talk about her origin story, we are honoured she shared with us the background behind the letter. We talk about how her daughter motivates her and is her most important teacher in the complex world of FASD, as well as:
“A lot of the stress that comes as a caregiver to a child with FASD doesn’t actually come from our kids. It comes from systems – systems that are not set up to work for our kiddos. If I didn’t have to advocate so hard in systems, my stress level as a caregiver would be a whole lot different.”
We also touch on systems, stigma and what she has learned from her membership on the CanFASD Family Advisory Committee. Shana has a natural ability to connect with people, and having seen her present, don’t miss the opportunity to attend one of her trainings if you can. If you cannot, then check out this podcast. Be sure to stay to the end, and try not to get emotional, as she reads the powerful letter from her daughter.
Support the Show.
HOPE SHREDS: Strumming Through the FASD Struggles with Demi!
Engaging Reluctant Dads: Strategies for Shared Success
How to Live with Less Fear and Frustration about the Future
Why Accepting Help...Helps! Unveiling Aaron Howlett’s Journey from Acceptance to Advocacy in FASD
From Edge of Collapse to Community Compass: Mary’s Triumph Over FASD Adversity | Episode 150
Episode #149: The Alex Duthie Episode
#148 Discover the Impact: Transforming FASD with Peer Mentorship
Episode #147: Legal Lifelines: Advocating for FASD in the Justice System
Episode #146: Navigating the Swear Storms: Understanding FASD and Swearing
Episode #145: The Shout-Out Special: Celebrating FASD Wins!
Episode #144: Unlocking Growth: How the FASD Brain Evolves and Why Your Efforts Matter
Episode #143: Making Waves: A Step-by-Step Guide to Igniting FASD Advocacy in Your City
Episode #142: Amanda Burley - How to Make and Keep Friends with FASD
Episode #141 Discover A New Mental Health Tool with Emma Jewell.
Episode #140: Audrey McFarlane – Pioneering Progress in FASD
Episode #139: How FASD Coaching Can Unlock Breakthroughs with Behaviors
Episode #138 Unlearning to Reconnect: Stacia Stribling's FASD Caregiving Journey from Professor to Not for Profit.
#137 Burnout to Breakthrough: Angela's Journey of FASD Hope
#136 Too Cool for School: The No-BS Guide to Getting Educators on Your Side
AHA! My FASD Lightbulb Moments - Flipping the Switch on Understanding and Empathy
Create your
podcast in
minutes
It is Free
The Meaningful Life with Andrew G. Marshall
The No-Frills Teacher Podcast
Heal, Survive & Thrive!
The Jordan B. Peterson Podcast
The Mel Robbins Podcast