Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein
Health & Fitness:Medicine
In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of
Ehlers-Danlos Syndromes.
Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes.
They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members.
Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.
Takeaways
Chapters ➡
00:00 Introduction and EDS Awareness Month
09:30 Identifying Hypermobility Conditions in Children
31:06 Early Intervention and Appropriate Treatment
42:04 Supporting Individuals with EDS in the Workplace
54:59 The Importance of Awareness and Empathy for EDS and Related Conditions
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
https://www.ehlers-danlos.com/
https://iadms.org/
https://www.edsguardians.org/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/
https://pubmed.ncbi.nlm.nih.gov/34524722/
#EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS
#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD
Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD
99. From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe
98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD
96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner
95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD
94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson
93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin
92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT
91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach
90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD
89. Conquering the Sleep Struggle with Roger Seheult, MD
88. Service Dogs and Disability Rights with Tiffany Lee, JD
87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner
86. The Unfair EDS Journey with Amanda Cassil, PhD
85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA
84. Slipping Rib Surgery in EDS with Adam Hansen, MD
83. Expert Insights: Breath Work in Pain Management with Jill Miller
82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD
81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT
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