We had SO much fun celebrating Down Syndrome Awareness Month in October. We featured many wonderful self-advocates who are shifting the DS narrative in big ways. And we’re so excited for all of them. But if you’re a parent of a child with DS who felt a little lost, sad, and maybe even lied to this past month.. then this episode is for you. We’re chatting about what happens when your child with Down syndrome doesn’t achieve all the things our society celebrates. Are they still worthy? Where does our value come from if not accomplishments? Our kids have been the greatest invitation to see the worth in others (and ourselves) apart from achievements.. and today we’re talking about why. We’re also chatting about how to share content about our children in honorable ways and how to receive content about other people’s children without comparing. Plus we’re exploring the “dark side to positive representation” that causes us to only celebrate people with DS who act the most like people without DS. WOW! So much to unpack here, friends. It’s a good one.
SHOW NOTES
Read Heather’s blog: What If My Child With Down Syndrome Can’t?
Read “DOWNism: When You’re not Even Good Enough for Your Own Community, or…The Dark Side of Positive Representation”
Read “My Mistake, My Bad”
LET’S CHAT
Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.
HELP US SHIFT THE NARRATIVE
Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!
--- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support255. A Haircut Beyond The Chair w/Vernon Jackson
254. The Next Step: Navigating Healthcare Transitions for Individuals with Down Syndrome (w/ Dr. Emily Johnson)
253. What If You Don’t Feel “Lucky”?
252. Planning For The Future: Involving Siblings In The Decision-Making Process
251. Rethinking What It Means To Be “Blessed” (w/AUTHOR Micha Boyett)
250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line?
249. One Million Reasons To Celebrate….The Lucky Few Podcast LIVE!
248. Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman)
247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker)
246. Heart Health & Navigating Heart Defects (w/Dr. Lorraine Schratz)
245. Can An Advocate Get It Wrong Sometimes?
244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano)
243. Still, The Best We Can (w/Heather & Josh Avis)
242. Is Inclusion A Privilege?
241. Developing A Down Syndrome Health Instrument w/Dr. Stephanie Santoro
Throwback: Creating Inclusion For All Learners (w/Tim Villegas)
Throwback: Is There Such A Thing As A Difficult Parent?
Throwback: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer)
Throwback: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson)
Throwback: Our Thoughts On The Netflix Series “Down For Love”
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