In this episode on the Living with Alzheimer's podcast, Christoph interviews Max Sherman, author of Releasing the Butterfly: A Love Affair in Four Acts.
The book shares many insights about caring for a spouse with Alzheimer’s while telling the story of Max and his wife Gene Alice (Genie) who met as teenagers in the 1950s while volunteering at a jail in the Texas Panhandle.
Max tells the story of how he and Genie created a partnership that enabled Max to become a lawyer, state senator and university president while Genie earned her doctorate to become a professor of music. The story continues as he tells how their shared love of literature, theater, film, and music became a critical connection after Genie was diagnosed with Alzheimer’s.
In the episode, Max shares many of the insights he has gained as a caregiver, and thoughts on how to maintain connection even while grieving the losses of the fading abilities of a spouse living with Alzheimer’s.
Max wanted to be certain to share that, in honor of Genie, all proceeds from the book go to Austin Presbyterian Theological Seminary's program in sacred music.
Tips and Resources for Gen X Caregiving
CareMobi: An app to improve healthcare outcomes for the elderly
Better Dementia Care - Focusing on the person and not their disability
Olera Care - Where families and caregivers can find resources to help them care for the elderly and those living with dementia
Meet the author of The Gap Between: Loving and Supporting Someone with Alzheimer’s
What families can do if they notice signs of dementia during the holidays
The Life Story Project - Helping provide dignified care for people living with dementia
Research and insider tips about self-care to help caregivers be more successful
What the heck is sundowning and how can caregivers help when it occurs?
Volunteering opportunities with Alzheimer's Association & sharing memories of Ginger's volunteering history
Alzheimer's Association Helpline resources and Ginger has a birthday!
Social engagement programs for people with dementia and their care partners
Neuropsychology and diagnosing dementia in your loved one
Alzheimer’s Association mission, research and support services
Recharging with yoga
Holding onto memories
Ginger learns we're doing a podcast
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