The Invisible Reality of LEMS

Living with LEMS isn’t always obvious to the outside world—but that doesn’t make it any less real. Invisible symptoms like muscle weakness, fatigue, or dizziness can quietly disrupt your workday, your weekend plans, or even your sense of identity.

In this episode of The LEMS Aware Podcast, host Amy Grover speaks with Maria, a nurse and home health administrator who was diagnosed with LEMS in 2025. Maria opens up about what it’s like to keep leading at work while dealing with unpredictable symptoms, and how she’s learned to adjust her routines, both professionally and socially, without sacrificing her values or voice.

If you’re learning to live with LEMS or walking alongside someone who is, this episode shares practical ways to deal with what others can’t always see.

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• Presented by Catalyst Pharmaceuticals
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