On this week's episode of The 1 Girl Revolution Podcast, we welcome Katelynn Smoot – wife, mother, advocate, and the fiercely devoted mama of little Lilah, the bright, joyful warrior behind Stand With Lilah. At just 18 months old, Lilah was diagnosed with ATRT-MYC, a rare and aggressive form of childhood brain cancer. Since that moment, Katelynn and her husband have been full-time caregivers — navigating hospital stays, treatments, sleepless nights, and the emotional, physical, and financial toll that childhood cancer brings. While the world saw the incredible moment when Taylor Swift donated $100,000 to Lila...
On this week's episode of The 1 Girl Revolution Podcast, we welcome Katelynn Smoot – wife, mother, advocate, and the fiercely devoted mama of little Lilah, the bright, joyful warrior behind Stand With Lilah.
At just 18 months old, Lilah was diagnosed with ATRT-MYC, a rare and aggressive form of childhood brain cancer. Since that moment, Katelynn and her husband have been full-time caregivers — navigating hospital stays, treatments, sleepless nights, and the emotional, physical, and financial toll that childhood cancer brings. While the world saw the incredible moment when Taylor Swift donated $100,000 to Lilah's GoFundMe and the Swifties who followed and matched it (which is INCREDIBLE!), most people don't see the day-to-day reality: the cost of cancer, the strain placed on young families, and the unimaginable strength it takes to keep going.
Still, through all the pain, fear, and uncertainty, Katelynn continues to show up with unwavering love, honesty, and hope. She uses social media to illuminate the realities of childhood cancer — for awareness, community, and to help others. And in the midst of caring for Lilah and raising their two babies, Katelynn and her family are also working to bless other families facing ATRT and childhood cancer this Christmas, raising money and collecting gift cards to spread comfort and love this Christmas.
In this episode, you'll hear:
✨ Katelynn's deeply personal story of receiving Lilah's diagnosis and navigating life afterward;
✨ The emotional, physical, and financial realities of childhood cancer — and what most people never see;
✨ How the Stand With Lilah community came together and what it has meant to their family;
✨ The impact of Taylor Swift's donation — and the bigger picture beyond that viral moment;
✨ How Katelynn uses social media to advocate, raise awareness, and build community for other families;
✨ Why the Smoot family is committed to giving back to other ATRT families this Christmas;
✨ Katelynn's reflections on motherhood, resilience, faith, hope, and the power of community;
✨ And so much more.
Katelynn Smoot is a 1 Girl Revolution — a mother of profound courage who is fighting for her daughter, raising awareness for thousands of others, and spreading love even in the darkest moments of life.
Support Katelynn and Lilah + Follow Their Journey:
Instagram: https://www.instagram.com/standwithlilah
GoFundMe: https://www.gofundme.com/f/stand-by-lilah-in-her-cancer-fight
Amazon Gift Cards for ATRT Families (Christmas Giving):
https://www.amazon.com/registries/gl/guest-view/3SRT5AG0HH9VE
Linktree (all ways to follow + support): https://linktr.ee/Standwithlilah
Listen + Subscribe:
Don't miss this powerful, heart-wrenching, and inspiring conversation — and so many others!
Listen to The 1 Girl Revolution Podcast on Apple Podcasts, Spotify, YouTube, or wherever you listen to podcasts.
✨ Join the movement to empower women and girls — and change the world, one story at a time. For more information, visit 1GirlRevolution.com
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