18. Living With Parkinson’s: Finding Joy, Movement, and Meaning — with award winning writer and journalist Marni Jackson

Most people underestimate how deeply Parkinson’s disease reshapes identity, independence, and daily life. In this revealing episode, award-winning writer and journalist Marni Jackson shares her journey from diagnosis to redefining how she lives, including the unexpected ways she pushes back through boxing, mindfulness, and movement.

Marni speaks candidly about living with an incurable disease, the importance of honest conversations around caregiving and asking for help, and finding joy and humour as life slows down. Her story offers a powerful reminder that resilience is not about fixing what is broken, but about presence, patience, and learning new ways to stay connected to yourself and others.

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This episode of The Hart Of It All is presented by Capital Direct. Invest in your family’s future and care with the Capital Direct One Income Trust a carefully, curated portfolio of residential mortgages.

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Resources:

Marni Jackson's Globe & Mail article about boxing with Parkinson's Disease:

https://www.theglobeandmail.com/opinion/article-after-being-diagnosed-with-parkinsons-im-literally-in-the-fight-of-my/

Rock Steady Boxing - Fighting Back Against Parkinson's Disease:

https://rocksteadyboxing.org/

Regent Park, Dancing with Parkinson’s:

https://parkinson.ca/care-finder/dwp-toronto-regentpark/

Canada's National Ballet School - Sharing Dance Parkinson's:

https://www.nbs-enb.ca/dance-for-life/sharing-dance-parkinson-s/

Follow Marni Jackson:

Instagram: https://www.instagram.com/marnibjackson

To watch this episode, subscribe to The Hart Of It All's YouTube channel: https://www.youtube.com/@TheHartofitAllPod

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Co-Executive Produced by: Carrie Hayden & Jess Carroll of 6of1 Digital

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I’m here to share stories and conversations, not medical or professional advice. I’m not a doctor, therapist, or licensed professional, and this podcast is NOT a substitute for guidance from qualified experts. Please seek out professional support when you need it. Take care and I’ll see you in the next episode.

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🟡 About The Hart of it All

A podcast about navigating the realities of caregiving.

No one should have to do it alone. That’s the heart behind The Hart of It All, hosted by Canadian broadcaster Teri Hart. Inspired by her own experience caring for her dad and helping her mom navigate a new reality, Teri shines a light on the stories, resources, and conversations caregivers need most.

From doctors and nutritionists to fellow caregivers living it every day, each episode offers guidance and connection. Honest, supportive, and grounded in lived experience, The Hart of It All is here to remind us that caring for each other is something we’re all in together.

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