Natalie (Sparacio) Hayden is an Inflammatory Bowel Disease patient advocate who was diagnosed with Crohn’s disease in 2005, She is a Mom of 2 beautiful children, with one more on the way. She is a former TV news anchor and reporter so she has had a very active life. Her blog is LightsCameraCrohns.com where she publishes weekly articles. She enjoys sharing stories about pregnancy and motherhood in hopes of comforting and empowering others.
I was struck by Natalie’s story about living with IBD and the overlap with the quality of life of living with Irritable Bowel Syndrome (IBS). It’s a similar constant power struggle that we have living with a digestive disease.
In my conversation with Natalie, she tells her story when and how was she diagnosed including her warning symptoms. Natalie told me about her day to day coping and what it’s like being a stay-at-home Mom and Mom to be, with the fear of starting a biologic and the effect on fertility. She speaks about parenthood and what can and can’t she do. She says it takes a wonderful partner to be able to cope.
Natalie believes that “the moment you open up and share your story is when you will receive support”.
Find Natalie Hayden at:
Find Jeffrey Roberts and IBS Patient Support Group at:
Music:
Werq Kevin MacLeod (incompetech.com)
Licensed under Creative Commons: By Attribution 3.0 License
http://creativecommons.org/licenses/by/3.0/
IBS Chat Episode 16: Mahana IBS is an FDA-cleared clinically proven digital app that uses Cognitive Behavioral Therapy to reduce IBS
IBS Chat Episode 15: My IBS story and advocacy journey as told to Tuft’s University School of Medicine Students
IBS Chat Episode 14: How Ernie Molina developed IBS after antibiotics and how Mary Molina helped him with Lola Snacks bars
IBS Chat Episode 13: Update on SIBO research with Dr. Mark Pimentel interviewed at DDW 2023 with Pam Emmer
IBS Chat Episode 12: What I Wish Someone had Told me About IBS with Johannah Ruddy MEd
IBS Chat Episode 10: Grace Whittle is an IBS patient who manages her symptoms with the low FODMAP diet and with help from her fiancée
IBS Chat Episode 9: My guest is mindfulness-based psychologist Jennifer Franklin Ph.D. who created DontHateYourGuts.com to help patients to be inspired to seek healing
IBS Chat Episode 8: Gut Feelings: Using the mind to treat the body in IBS with my guest Jeffrey Lackner PsyD
IBS Chat Episode 7: FoodMarble's AIRE, the portable breath test device to help you find the foods that agree with your digestive system
IBS Chat Episode 6: DDW highlights - Blautix a bacteria in Clinical Study for IBS; Exposure to Pets and IBS; The low FODMAP Diet and Children; Hospitalized IBS patients using Cannabis
IBS Chat Episode 5: Did your Irritable Bowel Syndrome (IBS) develop after food poisoning? The simple ibs-smart™️ blood test may be able to diagnose your IBS once and for all
IBS Chat Episode 4: Dr. Mark Pimentel is a pioneer in his work to uncover the role of bacteria and the link with Irritable Bowel Syndrome (IBS) and was my guest at DDW
IBS Chat Episode 3: Dr. William Chey is a Gastro Doctor and Food expert for functional bowel and motility disorders including Irritable Bowel Syndrome (IBS) and my guest at DDW
IBS Chat Episode 2: The important role that a dietitian plays in managing IBS. Kate Scarlata RDN, patient and advocate is my guest
IBS Chat Episode 1: How my Family Lives with Irritable Bowel Syndrome (IBS)
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