Dr Diana Karamacoska - Fomentar la inclusión en la investigación y los equipos de demencia

Gabriela Caballero narra un blog escrito por la Dra. Diana Karamacoska publicado en Dementia Researcher en nombre de ISTAART Partnering with Research Participants PIA (This blog has also been published in English).

Las personas de orígenes culturalmente diversos, particularmente aquellas que no hablan inglés, tienden a ser excluidas de las investigaciones sobre la demencia. Este es un tema urgente considerando las disparidades asociadas con el acceso de estas poblaciones a información sobre la demencia, apoyo diagnóstico, intervención, y servicios de atención en lugares altamente multiculturales como Australia, el Reino Unido y los Estados Unidos. Al ver estas diferencias de equidad en nuestras comunidades, inspiró a nuestro equipo a hacer la investigación en demencia accesible, inclusiva y equitativa. Ahora estamos compartiendo las lecciones que hemos aprendido para que otros equipos puedan adoptar la diversidad y evitar los problemas con los que nosotros nos enfrentamos.

Encuentre el texto original y la narración aquí en nuestro sitio web..

https://www.dementiaresearcher.nihr.ac.uk/istaart-blog-fostering-inclusivity-in-dementia-research-and-teams/

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Dr Diana Karamacoska is a Postdoctoral Research Fellow at Western Sydney University with a background in cognitive neuroscientist. Diana is moving in to the the public health field after seeing the stigma, health disparities, and lack of appropriate education about dementia in multicultural communities. Diana is also Vice Chair of the ISTAART Partnering with Research Participants PIA.

 

Gabriela Caballero (who provided the Spanish translation and narration for this blog) is a Researcher and PhD candidate in the NICM Health Research Institute, Western Sydney University. She recently completed a Bachelor of Psychology, during this time she worked as a crisis supporter and as a research assistant on multiple dementia-related projects. Gabriela's PhD focuses on improving the quality of life for multicultural communities impacted by dementia.

 

Research for dementia therapeutics and care occurs in a world that is constantly changing. We can improve accessibility and meaningfulness of research by integrating perspectives of participants in the design and conduct of research, as well as in the way results are disseminated. A global forum is needed for researchers to share best practices on how to partner with participants, as well as opportunities to learn directly from the lived experiences of a diverse group of research participants. The ISTAART Partnering with Research Participants PIA, works with existing PIAs and leverage existing groups to ensure broad access and applicability. 

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