Episode 6 of the HD Insights Podcast features an in-person conversation with Carolyn Gray, a nurse clinician and HSG Research Coordinator in the Department of Neurology at the University of Kansas Medical Center. Carolyn founded the Huntington Disease Clinic and Genetic Testing Program there in 1994, and has coordinated numerous observational studies and clinical drug trials in movement disorders. In this episode, we talk about the role of the clinical coordinator in a research trial, typically the person a trial participant has the most direct contact with throughout a study. She shares her experiences from working on clinical drug studies, the efforts and responsibilities of the coordinator, and what participants can expect during their trial visits to the research center. In 2017, Carolyn received the HSG Outstanding Coordinator Award.
Episode 26 - Erin Paterson
Episode 25 - Seth Rotberg
Episode 24 - Amy Chesire & Greg Suter
Episode 23 - Dr. Nicolò Zarotti
Episode 22 - Dr. Michael Hayden and PROOF-HD
Episode 21 -Brendan McLaren (Monash University)
Episode 20 - KINECT-HD with Dr. Dietrich Haubenberger
Episode 19 - Katie Jackson (Help4HD)
Episode 18 - Ignacio Muñoz-Sanjuán (Venzuela today and FACTOR-H)
Episode 17 - Dr. Leon Dure (Venezuela memories and Movement Disorders in young people)
Episode 16 - Dr. Ira Shoulson (Memories of Venezuela)
Episode 15 - Dr. Lauren Byrne (UCL)
Episode 14 - Dr. Bruce Compas (Stress and Families Coping with Chronic Illness)
Episode 13 - Dr. Adam Vogel
Episode 12 - Chandler Swope (HDYO)
Episode 11 - Dr. Mary Edmondson
Episode 10 - Physical Therapy's Role in Huntington's Disease
Episode 9 - Dr. Andrew Feigin (Huntington Study Group Chair)
Episode 8 - Catherine Martin (HDYO)
Episode 7 - Ken Serbin (aka Gene Veritas)
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