In this episode of our Young Onset Dementia series, guest host Kathy Hickman of the brainXchange and Alzheimer Society of Ontario sits down with her niece Rachel Broderick of Owen Sound, Ontario, whose Mother and Grandmother both developed and died in their 40s of a rare form of Alzheimer’s Disease. (Familial) caused by a genetic mutation. Rachel, along with her brother (both teens at the time), cared
for her Mom, Chantal, who was a single mother. The story of how she bravely faced this experience during her formative years and how it influenced the now 21-year-old woman she has become is truly inspiring. Rachel candidly shares with Kathy why she had made the difficult decision to have genetic testing done to find out whether she has the same genetic mutation and will develop Young Onset Dementia as her Mother and her Mother before she did.
Resources
"It Started with Oma"
Le rôle important des aidants et des ressources communautaires pour les personnes atteintes de troubles neurocognitifs majeurs.
Esprit en action
Mind over Matter: Game Changer
Circle of Music in Kitchener-Waterloo
L’importance de la communauté
Conversations That Matter: Talking About Dying and Dementia
Les defis de la proche aidance a distance
L’approche par le plaisir
Vivre le moment present et profiter de la vie
Dying & Dementia: Let’s Talk About It
Demystifying Dying: Stories from a Death Doula
Dementia and Indigenous Communities Part 2: A cultural perspective of dementia and dementia care
Taking it to the Streets: Reimagining Dementia
Dementia and Indigenous Communities Part 1: A cultural perspective of dementia and dementia care
Ruth and Maggie’s Story
2SLGBTQI & Dementia:From Research to Action
Modèles novateurs de résidences pour aînés vivant avec un trouble neurocognitif majeur: Conversation avec le professeur Philippe Voyer
Rainbow Wing in LTC and Emotion Based Care for 2SLGBTQ Residents
Les défis de la proche aidance à distance
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