In Episode 5, Chris and Kiran talk with Carly Jones MBE, an autistic mother of two autistic girls, autism advocate and campaigner whom, since 2008, has been campaigning for greater acceptance, equality of diagnosis, education and safeguarding of autism women, girls and their families. We talk about her personal story including homelessness and some of the work she does to support the autism community, camouflaging among autistic girls/women (and boys/men), the impact this has upon diagnosis and the need for qualitative approaches to diagnosis, the language and conceptualisations associated with special interests, mental health, and issues associated around the safeguarding of vulnerable autistic women.
Carly has produced a wide range of impactful resources including her free online course, 'Bodies Boundaries Abuse and Reporting It' (linked below), many successful blogs and articles some of which have been published in the national press. Carly also does many national and international events aimed at creating positive impact both in terms of positive social attitudinal change and also steering government policy. She also mentors and personally supports families, works on research advisory panels and much more. All of this led Carly receiving an MBE for all of her work in May last year.
If you enjoy the episode please consider supporting us by going to https://www.facebook.com/londonautismgroupcharity/ and using the blue donate button or by setting up a Facebook fundraiser. Or you can paypal us a donation at londonautismgroupcharity@gmail.com. You can also find us on Amazon Smiles and Give As You Live. We are a small and new charity with many big ideas about how to make a positive impact but need your support to help achieve this! Thank you.
Episode timeline:
0 - 2:37 - Intro
2:38 - 8:32 - Carly's story
8:33 - 10:17 - Homelessness and autism
10:18 - 15:35 - Camouflaging among autistic women
15:36 - 26:31 - Challenges with the diagnosis of autistic women including current screening tools
26:32 - 28:43 - Carly's mentoring and support work
28:44 - 36:05 - What do parents of autistic girls need to know, and language and conceptions of special interests (vs obsessions vs experts)
36:06 - 41:22 - Parental mental health
41:23 - 50:40 - Safeguarding
50:41 - 1:00:53 - Advice for autistic people struggling with poor mental health
Carly's website: http://britishautismadvocate.simpl.com/
Carly's twitter: https://twitter.com/CarlyJonesMBE
Carly's film, Epidemic of Knowledge: https://www.reelhouse.org/olley/epidemic-of-knowledge
Carly's YouTube playlist: https://www.youtube.com/channel/UC58oNplP6pFoBS7wuL3bNUg
Carly's free online safeguarding course 'Boundaries , Bodies, Abuse and Reporting it for Autistic Girls' - https://www.openlearning.com/courses/boundaries-bodies-abuse-and-reporting-it-for-autistic-girls-
Interview with David Gray-Hammond about addiction, self-medication, autistic community, stigma, discrimination, autistic rights and more!
Interview with Simeon Thompson about self-acceptance as an autistic person, mental health, approaches to social interaction and more
Interview with Tess Eagle Swan about service assistance animals (and much more!)
Interview with Jenny Teuten about being a sibling and carer to her autistic brother with learning difficulties
Interview with Emily from @21andsensory (exploring the negative and positive experiences of Emily‘s journey towards diagnosis)
Interview with Ginny Grant (on the topics of late diagnosis, mental health and eating disorders)
Interview with Alan Morrison (on the topic of education and schooling for neurodivergent people, and the power of validation, diversity and kindness)
Interview with Kirsty Pellow on parenting children with different support needs, the battles for SEND provision and its toll on mental health
Interview with Julie Caitlin Brown (on the topics of autistic sci-fi fandom, stigma, inclusion, self-acceptance and compassion)
Interview with autistic author Cameron Straughan (employment discrimination, misconceptions around autistic humour and more)
Interview with Katya Balen and Miranda Prag (founders of Mainspring Arts!)
Interview with Abby Brooke, an autistic advocate based in Kenya and lead of the 'Walking Autism' initiative
The Autism Podcast - Livestream interview with Jo Grace & Becky Lyddon on sensory processing (with a focus on toileting & eating related sensory issues & coping during Covid-19)
The Autism Podcast - Interview with Joan Pons Laplana on the topic of Neurodiverse Nurses
The Autism Podcast - Livestream interview with Tigger Pritchard on the topic of PDA (Pathological Demand Avoidance)
The Autism Podcast - Livestream interview with Kieran Rose (The Autistic Advocate) about mental health during the Coronavirus / Covid-19 pandemic
The Autism Podcast - Livestream interview with Lola Alvarez-Romano about mental health during the Coronavirus / Covid-19 pandemic
The Autism Podcast - Interview with Callum Brazzo (on the topics of poetry and performance, autistic advocacy, mental health and more)
The Autism Podcast - Interview with Christa Holmans (aka Neurodivergent Rebel) on the topic of neurodiversity
The Autism Podcast - Interview with Lola Alvarez-Romano (on the topic of psychotherapy and mental health support for parents/carers)
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