We are thrilled to welcome to More Than Child’s Play two very special parents, Sheri and Jeremy Mills. They are the parents of a delightful, sweet, smart, and spunky almost 3 year old who happens to have Prader Willi Syndrome. In honor of PWS Awareness month, Sheri and Jeremy join us to share their journey as a way to educate and support other families and medical providers serving people with this rare disease. We discuss what learning their child had PWS was like for them, how they navigated and continue to navigate medical and support services for their daughter, and exciting upcoming and hopeful news in PWS research. They explain hyperphagia and the wholistic and healthy approach their family has implemented to set life long habits for their child. We discussed what they’d like medical providers and other parents to know and had a real conversation about maintaining parental mental health. If you are a family member or friend of someone with PWS or a healthcare provider, you won’t want to miss this conversation. Hearing their story will give you needed insight and inspiration.
Links based on discussion:
Roadblocks to Natural Development Series: #3 Undetected Vision Loss & #4 Undetected Hearing Loss
2021 Shop Local, Small Business Centered Holiday Gift Guide with Nicole and Lacy
EARLY COMMUNICATION: preverbal skills, using gestures and signs to support language development and common mistakes parents make with Laura Brown, M.A., CCC/SLP
Why Climbing Up The Slide Matters: a PT’s tips on safety awareness, balance, and motor learning with Stacy Menz PT, DPT, PCS
Safety and Success For The Pediatric/Adolescent Athlete with Dr. Brad Dinklocker, PT, DPT, MS, ATC & Larry Shipley, LPTA, Performance Coach
Understanding Dyslexia Signs and Executive Functioning Skills in Toddlers and Preschoolers with Jeanette Washington, M.Ed.
The Secrets to Taming Toddler Tantrums with Michael Powell, Psychologist
The Importance of Play for the Developing Child with Emily Cohen, M.A., CCC/SLP
A Parent’s Perspective on NICU and Preemie Care
All About Cleft Lip & Cleft Palate with Meg Lico, M.S., CCC/SLP
Diagnosing Speech Sound Disorders in Early Intervention with Amy Graham, M.A., CCC/SLP
Baby's First Words: When, What and How with Kimberly Scanlon, M.A., CCC/SLP
Pediatric Toe Walking with Dr. Liesa Ritchie-Persaud PT, DPT, PCS
Keeping Summer Speech Practice Simple with Jen Leroux, M.A., CCC/SLP
More Than a Hoarse Voice - Pediatric Voice Disorders Explained with Lila Griffith, M.S. CCC/SLP
Understanding Adult Learning Principles to Enhance Your Coaching in Early Intervention with Stacey Landberg, M.S., CCC/SLP
Partnering with Parents through Collaborative Coaching with Cari Ebert, M.S., CCC/SLP
Early Identification and Treatment of Hearing Loss with Sydney Bassard, MSP, CCC/SLP
Childhood and Adolescent Mental Health in Pandemic Times with Melissa Swartz, LPC, Trauma Therapist
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