Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Attorney Joel Rosen woke up one day and he wasn't feeling well. He thought maybe it was a cold. But he just couldn't get to feeling better. That sent him through a series of tests that eventually led to a diagnosis of sarcoidosis. As an attorney, he had already generously loaned his talents to several non-profits. And now we can add the Foundation for Sarcoidosis Research to the list. Joel is the newest board member for FSR, and in this episode of the Sarc Fighter podcast, he talks about how it took months to find a diagnosis and how he became more and more involved with the work FSR is doing to help patients cope, and researchers find treatments and maybe one day, a cure.
Show Notes
More on aTyr Pharma: https://atyrpharma.com/
Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq
More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/
More on Joel Rosen: https://highswartz.com/high-swartz-news/sarcoidosis-board-member/
Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/
Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/
MORE FROM JOHN:
John's Documentary from the U.S. Mexico border: https://www.wsls.com/video/news/2023/09/19/frontline-with-john-carlin--full-spec
John Carlin's Outdoors: https://www.wsls.com/topic/John_Carlin%27s_Outdoors/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
Episode 110 | Walgreens is helping to fight Sarcoidosis
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
Episode 106 | Rachelle DeMaria just wants to launch her life
Episode 104 | John Martin thought it was time to get his affairs in order.
Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
Episode 99 | How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis community
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
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