Empowering Lupus Patients: A Treatment Measure Shaped by Their Voices

In this podcast, Dr. Anna Wolska sits down with Dr. Eric Morand to discuss a groundbreaking effort to improve how lupus treatment success is measured in clinical trials. Dr. Morand explains why existing tools weren’t designed for tracking treatment response and describes a rigorous, patient-inclusive Delphi process that narrowed dozens of possible disease aspects down to eight meaningful domains. By involving patients at every step, the new measure focuses on what patients truly feel and function. Early work on defining precise assessments for each domain is underway, with practical use in trials expected by 2026, promising clearer results and faster access to new lupus therapies.

 

Read the paper published in LSM - https://doi.org/10.1136/lupus-2024-001484