Sickboy

"My Tongue is Shedding" | Refractory Myasthenia Gravis

What do you do when your own tongue starts "shedding" like a snake and your doctor tells you to just "eat a banana"? Imagine waking up and seeing the world through 90s TV static, while your muscles literally stretch and tear like gum when you yawn. Làyla joins the boys to break down the reality of living with Refractory Myasthenia Gravis (MG), a version of the illness so stubborn it requires constant infusions just to keep her stable. From the terrifying moment she realized her jaw was atrophying, to the bizarre neurological world of Visual Snow Syndrome, Làyla shares it all with a level of humor and confidence that is honestly infectious.You can watch this entire episode over on YouTube: https://www.youtube.com/playlist?list=PL0EVgIbBQOxtKJ4qjAlfeutzZRfCGV8nbFollow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

My Spleen Is Where My Lungs Should Be | CDH

What happens when your abdomen decides it's tired of the basement and wants to move into the penthouse suite? This week, we sit down with Jude, who was born with a rare birth defect called Congenital Diaphragmatic Hernia (CDH). In plain English: they had a hole in their diaphragm (the dinner-plate-sized muscle that keeps your "upstairs" and "downstairs" separate) and their organs decided to throw a housewarming party in their chest cavity. We're talking a spleen, liver, and bowels all fighting for real estate where their lungs were supposed to grow. Jude is living proof that even if you start life with your organs in the wrong room, you can still build a hell of a house.Follow Sickboy on Instagram, TikTok and Discord!

A Love Affair with the Unknown: How Gill Deacon Beat Long COVID

What happens when a "Professional Knower" gets hit with a disease that has absolutely zero f*cking answers? Broadcasting legend and former CBC host Gill Deacon spent her life demanding answers for the public, but in 2022, her own body became the ultimate mystery. From her heart feeling like a "motorized toy" to wearing a wool toque 24/7 just to feel a semblance of warmth, Gill takes us through the 20-month wilderness of Long COVID. In this episode, we dig into the "stew of symptoms" that forced a high-functioning pro into bed rest and the radical neuroplasticity workshop that eventually helped her "climb out" and reclaim her life. Gill’s new book, A Love Affair with the Unknown, is available now.Follow Sickboy on Instagram, TikTok and Discord!

My Sister Confessed Her Dark Secret to Me While I was in A Coma | Stroke at 21

Imagine being 21 years old, trapped in a two-week coma, completely unable to move or speak, while your sister leans over your bed and confesses her deepest darkest secret to you, and you hear the whole thing.This week, we sit down with Melanie, who at 21 years old, went from a "parking lot" migraine on the 401 to a life-saving brain surgery that left her in a two-week coma . But Melanie wasn't just "asleep"—she describes a vivid, "locked-in" experience where she heard every secret her friends whispered and saw her aunt’s birthday wishes in brushstrokes of pink and purple. Melanie shares her "heritage moment" journey of proving every ableist professor wrong by becoming the first legally blind person to graduate from teachers' college in Ontario, despite the system betting she wouldn't make it to Christmas. Melanie’s story is a masterclass in why you should never tell a "determined" woman what she can’t do.Check out the incredible work Melanie does: https://connect4life.ca/Follow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

The "Mindf***" of Long COVID: From CEO to "Currently Disabled"

Briefing the President one day, forgetting how to cook bacon the next. What happens when a high-achieving powerhouse (Harvard grad, Wall Street alum, and Obama White House staffer) suddenly loses her most prized asset: her mind? Marisa Renee Lee joins the boys to get brutally honest about her "dumpster fire" journey with Long COVID. From the visceral pain of biting through a night guard in her sleep to the terrifying moment her larynx was 70% blocked while on a "restorative" trip to Greece, Marisa’s story is a raw look at identity, ego death, and the absolute chaos of a body in revolt. We dive into the controversial intersection of vaccine injury and infection, the skepticism Black women face in the U.S. healthcare system, and the three questions that forced her to reframe her life as "currently disabled".For all things Marisa - https://www.marisareneelee.com/aboutYou can watch this entire episode over on YouTube.Follow Sickboy on Instagram, TikTok and Discord.