Rarely Heard: Hunter Syndrome

Episode 1: The early signs of Hunter syndrome

Hunter syndrome is a rare and life-changing disease. In this introductory episode, we provide a basic overview of Hunter syndrome, its cause and genetic inheritance. We also go over its common signs and symptoms, as well as the journey to a diagnosis. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda. Date of recording: April 2021 VV-MEDMAT-45370 Hosted on Acast. See acast.com/privacy for more information.

Episode 2: Managing the symptoms of Hunter syndrome

Hunter syndrome has a wide range of clinical manifestations and requires a complex treatment and management strategy. This episode details the multiorgan nature of the disease, potential management options, and how they can reduce the likelihood of complications for patients. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda. Date of recording: April 2021 VV-MEDMAT-45371 Hosted on Acast. See acast.com/privacy for more information.

Episode 3: Improving emotional well-being for families

Parents and caregivers have to deal with many challenges in their daily lives and complicated emotions that affect their well-being. This episode addresses the psychological aspects of caring for a child with a complex and chronic disease. We provide a holistic overview of life with Hunter syndrome and some suggestions for families. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda. Date of recording: April 2021 VV-MEDMAT-45372 Hosted on Acast. See acast.com/privacy for more information.

Episode 4: A doctor’s perspective: The spectrum of patients with Hunter syndrome

The clinical symptoms of Hunter syndrome appear across a diverse spectrum. In this episode, we are joined by Dr Barbara Burton, a specialist in the disease. Dr Burton discusses how Hunter syndrome has impacted patients in her clinical practice and the challenges in reaching a diagnosis. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda. Date of recording: April 2021VV-MEDMAT-45374 Hosted on Acast. See acast.com/privacy for more information.

Episode 5: A doctor’s perspective: Multidisciplinary care for Hunter syndrome

Managing Hunter syndrome is a complex and life-long process, with many specialists involved in caring for patients. In the second part of our interview with Dr Barbara Burton, we take a deeper look at the importance of a coordinated care approach in managing Hunter syndrome. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda. Date of recording: April 2021 VV-MEDMAT-45377 Hosted on Acast. See acast.com/privacy for more information.