Parkinson's Disease Podcast, by Health Unmuted

Trailer: Welcome to the Parkinson's Disease Podcast

The World Health Organization reports that the number of people with Parkinson's disease has doubled over the past 25 years, estimating over 8.5 million individuals living with Parkinson's globally. (1)A diagnosis brings questions, concerns and fears about what lies ahead. The Parkinson’s Disease podcast is a miniseries told by people living with Parkinson’s disease, their loved ones and health experts. We explore what causes Parkinson’s, how it’s diagnosed, and the treatments that are available.And we discuss how caregivers and loved ones can cope with Parkinson's disease, too. Listen, follow and share this series with the people in your life.Follow: Website | Twitter | LinkedIn | Facebook | InstagramFor informational purposes only. Please consult a registered health professional for advice.The Parkinson's Disease Podcast is made possible with support from Altoida and LSVT Global.References(1) https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief Learn more about your ad choices. Visit megaphone.fm/adchoices

Ep 1: What Is Parkinson’s Disease?

The World Health Organization reports that the number of people with Parkinson's disease has doubled over the past 25 years, estimating over 8.5 million individuals living with Parkinson's globally. (1)Parkinson’s is a degenerative condition which is often associated with tremors, imbalance and rigidity, but it affects every person differently. In this first episode of the Parkinson’s Disease Podcast, we’ll start with the basics:  What is Parkinson’s Disease?  Who is at risk of developing Parkinson’s? What are some early signs of the condition?  We’ll also hear what it’s like to live with Parkinson’s disease from those diagnosed.For more links and resources, visit our website at HealthUnmuted.comWhat did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!ResourcesWhat is Parkinson’s? Webinar on recognising the early signs of Parkinson’s - Parkinson’s Foundation Other parkinsonion conditions - Parkinson’s Foundation Genetic causes of Parkinson’s - Michael J Fox Foundation Webinar on sleep disorders and acting out dreams - Michael J Fox Foundation  Terms Mentioned Dopamine - WebMD Tremor and Resting Tremor - Parkinson's Foundation Rapid eye movement (REM) sleep behavior disorder - Mayo Clinic  Olfactory nerve - nerve relating to the sense of smell Hoehn & Yahr staging - Parkinson's Foundation Axial symptoms - these include symptoms such as walking disorders, posture disorders, and speech and swallowing disorders HelplineParkinson’s Foundation Helpline - 1-800-4PD-INFO (473-4636)PodcastSubstantial Matters: Life and Science of Parkinson’s PodcastCommunity GroupPD AvengersGuests’ Books  Ending Parkinson’s Disease: a Prescription for Action by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD and Bastiaan R. Bloem MD PhD References(1) https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief Get all the links and the episode transcript by visiting the website here.This episode is made possible with support from Altoida and LSVT Global. Learn more about your ad choices. Visit megaphone.fm/adchoices

Ep 2: How Is Parkinson’s Disease Diagnosed? And How Is a Care Team Created?

Parkinson’s disease can’t be diagnosed through a simple blood test or scan. After a referral from a primary care doctor, it often takes visits to a neurologist or movement disorder specialist before receiving a clinical diagnosis. In this episode, we speak to healthcare providers and those living with the disease about the diagnostic process. We also explain how to build a Parkinson’s care team - a group of healthcare providers that provide support after diagnosis.For more links and resources, visit our website at HealthUnmuted.comResourcesBuilding a care team Movement disorder specialist directory - International Parkinson’s and Movement Disorder Society Find a PD expert care center - Parkinson’s Foundation Building a care team - Michael J Fox Foundation Support after diagnosis Early signs of PD- Brain and Life Magazine (AAN) Guide to the early years after diagnosis - Michael J Fox Foundation Terms Mentioned DaTscan - test to help in the diagnosis of Parkinson’s, read more on APDAPodcastThe Michael J Fox Foundation Parkinson’s PodcastCommunity Group PD Avengers Get all the links and the episode transcript by visiting the website here.This episode is made possible with support from Altoida and LSVT Global.What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know! Learn more about your ad choices. Visit megaphone.fm/adchoices

Ep 3: What Is Young-Onset Parkinson’s Disease?

Does Parkinson’s only affect older people?  A common misconception is that Parkinson’s disease only affects people in the later stages of life, but that isn’t always the case. Young-Onset Parkinson’s disease refers to people who are diagnosed much earlier, sometimes in their 20’s or 30’s.  In this episode, we hear from three people who are living with Young-Onset Parkinon’s disease about their experiences, and the impact on and adjustments to their careers, health decisions and family life after diagnosis. For more links and resources, visit our website at HealthUnmuted.comResourcesTalking about Parkinson's Talking to your Children about Parkinson’s - Michael J Fox Foundation My parent has parkinson’s fact sheet - Parkinson’s Foundation  Talking to your employer about PD - Parkinson’s Foundation  Terms from this Episode Hand Dystonia : "excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder" - Dystonia Foundation Podcasts Learning About Parkinson's Podcast Young Onset 101 podcast episode - Parkinson’s Foundation  Parkinson's Life Podcast Community GroupPD AvengersGet all the links and the episode transcript by visiting the website here.This episode is made possible with support from Altoida and LSVT Global.What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know! Learn more about your ad choices. Visit megaphone.fm/adchoices

Ep 4: Treatments for Parkinson’s Disease, and the Role of Clinical Trials

There's no cure for Parkinson's disease, but there are ways to manage it and treat symptoms.In this episode, we explore how different types of medications can help, and the importance of clinical trials in progressing treatment options. We hear from people who are living with Parkinson’s disease about their medication journeys.  We also discuss an alternative surgical treatment that is available: deep brain stimulation. For more links and resources, visit our website at HealthUnmuted.comResourcesMedication Medication explained - Mayo Clinic Webinar about on/off time - Michael J Fox foundation  Parkinson’s Drugs- Parkinson’s UK Resource FDA Approved Medications-  APDA Terms Mentioned Carbidopa-levodopa - Mayo Clinic Sinemet, Parcopa, Duopa and other brand names for Sinemet - on Medscape Dopamine agonists (pramipexole, ropinirole) - Mayo Clinic Dyskinesia- Parkinson Foundation Deep Brain Stimulation - Mayo Clinic Alternative Surgical Treatment Option Deep Brain Stimulation - Parkinson's OrgClinical Trials Clinical Trials- Parkinson’s Foundation Clinical Trials Recruiting- Cure Parkinsons PodcastsParkinson's Foundation PodcastCommunity GroupPD AvengersGet all the links and the episode transcript by visiting the website here. This episode is made possible with support from Altoida and LSVT Global.What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know! Learn more about your ad choices. Visit megaphone.fm/adchoices