Living with CREST, aka Limited Scleroderma

When Cammie and Evan’s two boys were 1 and 2 years old, Cammie was diagnosed with CREST disease. CREST, also known as limited scleroderma, is an intensely painful rheumatic condition with a wide variety of symptoms that progressively affect the entire body. Cammie was told if she did everything right she may have 8 to10 good years left. 9 years later she is still determinedly living her life.

In this episode of the Major Pain podcast, Cammie and Evan share what their lives have been like since Cammie’s diagnosis. They talk about the impact of this disease on their relationship, and how they’ve raised their boys with the knowledge that their mom won’t be around forever. They also share the medications and coping mechanisms that have been helpful, all of which were difficult to come by since this disease is so poorly understood.

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