Living With Crohn’s Disease and a Rare Disease

Living with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with strange and seemingly disconnected signs and symptoms. He continued to have problems which resulted in two hip replacements that were blamed on prednisone. However, after one of those hip replacements became dislocated, Aaron went looking for more answers and wound up suspecting that he also had an ultra-rare condition called hypophosphatasia.

Concepts discussed on this episode:

• Osteonecrosis (Avascular Necrosis) Explained
• What Is Alkaline Phosphatase?
• Soft Bones, Inc
• National Organization for Rare Disorders (NORD)
• Ultra-rare disease diagnosis is an uphill battle

Find Aaron Blocker on Facebook, Twitter, and Instagram.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party,” is from ©Cooney Studio.