Throwback Episode 205: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko (Originally aired 5/2/23)
Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.
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SHOWNOTES:
Learn more about Down Syndrome Clinic To You
If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support206. Nurturing Meaningful Connections With Our Kids
205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko
204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward
203. Beyond Checking A Box
THROWBACK: Politics & Down Syndrome w/Kayla McKeon and Ashley Helsing
202. Living In Technicolor & Listening To Your Heart w/Jennifer Varanini Sanchez
THROWBACK: Following the Lead of Self-Advocates (ft. Matthew Schwab)
201. Sofia Sanchez: Filming ‘The Hunger Games’, Her New Book, Self-Advocacy, & Middle School
200. It's our 5 year anniversary!
199. What We Wish We Knew, Had, & Told Ourselves In The First Years…
198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools
197. Exposing The Roots (Racism, Ableism, Microagressions, + More)
196. Couples Q & A! (ft. our husbands)
195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)
194. Undoing Ableism & Telling True Stories with April Aguilera (writer of "For Paloma")
193. Lets catch up!
THROWBACK: What if my child with Down syndrome can't?
THROWBACK: Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
THROWBACK: Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)
THROWBACK: Diversity in the Down Syndrome Community
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