Often, the more we learn about a disease, the more we learn about ourselves and the world around us. The story of the genetic disorder osteogenesis imperfecta (OI), colloquially known as brittle bone disease, illustrates this perfectly. As researchers continue to uncover the mechanisms responsible for OI development and progression, the better we understand the varied and crucial roles collagen plays in all parts of our biology. As historians attempt to trace how that knowledge has accumulated over time, the more we can clearly see how science rarely progresses consistently but rather erratically and is prone to interruption. And as we assess where we are with OI treatment and research today, the more apparent the gap is between knowledge and application, and just how critical lived experiences are in understanding a disease. In this episode, we explore these aspects of osteogenesis imperfecta, and we are thrilled to be joined by Natalie Lloyd, who shares her experience with OI as our firsthand account. Natalie is a New York Times bestselling author of novels for young readers, whose recently published award-winning book Hummingbird tells the story of a young girl with OI. Heartwarming, magical, and brilliant, this wonderful book is a must-read. Tune in today!
Learn more about your ad choices. Visit megaphone.fm/adchoices
Ep 122 Asthma: A phlegmy episode
Special Episode: Ed Yong & An Immense World
Ep 121 Tularemia: Hare today, gone tomorrow
Special Episode: Deborah Blum & The Poison Squad
Ep 120 Acetaminophen/Paracetamol: Pain. Killer.
Special Episode: Dr. Andrew Wehrman & The Contagion of Liberty
Ep 119 Marburg virus: Too fast, too furious
Special Episode: Dr. Steven Thrasher & The Viral Underclass
Ep 118 Asbestos: Corruption and cancer and corporate greed, oh my!
Special Episode: Mary Roach & Fuzz
Ep 117 Bedbugs: Bug-bitten and bedeviled
Special Episode: Dr. Kate Clancy & Period
Ep 116 It's never lupus (except this time)
Ep 115 Altitude Sickness: Balloons though?
Special Episode: Angela Saini & Superior
Ep 114 Listeria: It put dairy on the map
Special Episode: Sarah Everts & The Joy of Sweat
Ep 113 Vitamin D: The D stands for drama
Special Episode: David Quammen & Breathless
Ep 112 Epilepsy: It’s always the phlegm
Create your
podcast in
minutes
It is Free