Epidermolysis Bullosa with Karen Thackray, DEBRA UK and Lisa Irvine

2025-02-23

Karen Thackray from DEBRA UK and Lisa Irvine joined us to discuss the rare skin condition epidermolysis bullosa (EB), sometimes known as butterfly skin.Lisa and her daughter live with EB and offer first-hand insights into the genetic skin condition that causes painful blisters. Karen breaks down the four main types of EB and their varying impacts. Through our conversation, we aim to raise awareness and foster a deeper understanding of EB as a dynamic disability that causes severe pain, as well as the emotional toll of constant adaptation to manage and...

Karen Thackray from DEBRA UK and Lisa Irvine joined us to discuss the rare skin condition epidermolysis bullosa (EB), sometimes known as butterfly skin.

Lisa and her daughter live with EB and offer first-hand insights into the genetic skin condition that causes painful blisters. Karen breaks down the four main types of EB and their varying impacts. Through our conversation, we aim to raise awareness and foster a deeper understanding of EB as a dynamic disability that causes severe pain, as well as the emotional toll of constant adaptation to manage and care for the skin and judgement of strangers.

If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.

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