199. What We Wish We Knew, Had, & Told Ourselves In The First Years…

Take it from us, parenting is hard and those first years can feel like the hardest, especially with an unexpected diagnosis. But we promise that when you look back, you’re going to remember the sweet moments the most. Today’s episode is for all the new parents in the Down syndrome community. We’re sharing all the items we wish we used, the wisdom we wish we had (especially when it comes to all the therapies..) and what we wish we would have told ourselves to get through those early years. We’re also chatting about the DS groups that provided education, support, and community to us. Looking for a good book? You know the three of us love to read (and write!) so we’ve got you covered with plenty of recommendations: practical advice, encouragement, memoirs, and more!

Bottom line: we know that the Down syndrome diagnosis can feel overwhelming. We wish we didn’t worry so much about all the “what ifs.” Friends, love those sweet babies for the gift that they are. We promise the things you’ll worry about now won’t matter when you see their first smile or hear their sweet giggle. So go snuggle those babies in a moby wrap for us and jot down one of our mantras! You got this.

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Learn more about: Down Syndrome Diagnosis Network (DSDN)

Wish we had:

Moby Wrap ; Hip Helpers ; Bob Stroller

Books we love:

The Lucky Few by Heather Avis

Expecting Adam by Martha Beck

A Good and Perfect Gift: Faith, Expectations and A Little Girl Named Penny by Amy Julia Becker

Unbound: The Life and Art of Judith Scott by Joyce Scott

Entwined: Sisters and Secrets in the Silent World of Artist Judith Scott by Joyce Scott

The Parent's Guide to Down Syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood by Jennifer Jacobs

Babies with Down syndrome: A New Parents Guide

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