Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy

Links & Resources:

Follow Their Journey on Social Media

• Facebook: Paxtons Pioneers
• Instagram: Paxtons_Pioneers
• 
  

KCAL News Story

• Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage