Life with an Invisible Disorder

Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial dosing of gene therapy for hemophiia B. 

 

Show Notes:

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Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

 

It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

 

On the Shoulders of Giants Film

Watch the movie and host a screening: ontheshouldersfilm.com 

 

Beyond our Blood

Watch the short films and download the facilitation guide: beyondourblood.com

 

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