Jake Haendel, the only known survivor of stage four Locked-In Syndrome, joins the Nurses Uncorked Podcast to share an unbelievable story of survival, addiction, and a miracle recovery. Acute Toxic Progressive Leukoencephalopathy (ATPL) is a complex rare neurological condition that attacks the white matter of the brain. Sometimes referred to as a pseudo-coma, it has been described as your body becoming a prison. Jake discusses the awkward moments he overheard while in a locked-in state, the significance of nurses' interactions, and his journey to regaining communication. The conversation emphasizes the need for healthcare professionals to maintain awareness of their patients' potential perceptions and the impact of their words and actions. In this conversation, he shares his profound experiences with isolation, trauma, and recovery, emphasizing the importance of humor, positivity, and resilience. Additionally, Jake introduces his accessibility app, Ahoi, designed to help disabled individuals navigate public accessibility. The discussion concludes with insights into his podcast, Blink, where he plans to share his full story and the challenges he faces during his recovery.
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Chapters:
03:33 Introduction to Locked-In Syndrome
04:47 Cocktail of the Week
07:58 Understanding Locked-In Syndrome
10:00 Jake's History of Drug Abuse
13:49 The Day Everything Changed
22:40 Receiving the Terminal Diagnosis
28:10 The Experience in the Hospital
37:17 Patient Perception and Awareness
39:30 The Nurse Who Made a Difference
41:50 Near-Death Experiences and Insights
48:25 Tracking Time While Locked-In
52:20 The Role of Entertainment in Recovery
55:58 The Importance of Communicating with Patients
58:37 Enema of the Week Award
1:01:21 The Worst Enema Story
Help support Jake Haendel's recovery:
https://www.gofundme.com/f/jacob-haendels-recovery-fund
Connect with Jake Haendel:
Instagram: @miraclman31. https://www.instagram.com/miraclman31/#
Tiktok: @miraclman31. https://www.tiktok.com/@miraclman31
YouTube: @miraclman31. https://www.youtube.com/@miraclman31
Blink | Jake Haendel Story Podcast:
https://www.blinkthepodcast.com/
https://podcasts.apple.com/us/podcast/blink-jake-haendels-story/id1779813806
https://open.spotify.com/episode/1f8xqkipaynS2uqYJp1lUM?si=J9Cxj91_SJ6tZ06FQBKplQ
Instagram: @blinkthepodcast https://www.instagram.com/blinkthepodcast/?igsh=MW11dGRoeXhjamozbw%3D%3D&utm_source=qr#
Ahoi App:
https://apps.apple.com/us/app/ahoi/id1629306597
Cocktail of the Week:
Fat Clouds Beer by Arkane Aleworks
https://www.arkanebeer.com/product/fat-clouds-2/
Sources:
CBS Sunday Morning Interview: https://www.youtube.com/watch?v=tFVpFyj0570
https://www.sciencedirect.com/science/article/abs/pii/S0022510X22002829
https://pmc.ncbi.nlm.nih.gov/articles/PMC7028629/
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