Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
In Episode 29 of the Sarc Fighter podcast, Susie Torres tells the story of how hard it was to determine what was wrong with her. Doctors mistook her illness for many other problems -- once even sending her to a psychiatric hospital.
Note: I first met and interviewed Susie in early 2020 -- pre-pandemic. Susie writes that since we did the interview she has had gastric bypass surgery and lost 100 lbs! She also writes that her sarcoidosis is in remission, but she is still battling another rare disease -- possibly Sjogren’s Syndrome (SHOW-grins), which is is a disorder of your immune system identified by its two most common symptoms — dry eyes and a dry mouth. The condition often accompanies other immune system disorders, such as rheumatoid arthritis and lupus.
Utah Sarcoidosis Support https://www.facebook.com/groups/2028388207424165/
Nourish by Lindsey: https://www.nourishbylindsey.com/
https://www.healthline.com/nutrition/elimination-diet
Meet Lindsey Norenberg https://www.nourishbylindsey.com/about
Leaky Gut https://www.health.harvard.edu/blog/leaky-gut-what-is-it-and-what-does-it-mean-for-you-2017092212451
Just Thrive Probiotics https://justthrivehealth.com/
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
Episode 49 | Adam Bernardi has sarc in all the wrong places.
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
Episode 47 | Women of Color Fight Back!
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
Episode 37 | Sarc Fighter Charlton Harris is having a hard time breathing. A REALLY hard time.
Bonus Episode | Sarcoidosis and COVID-19 Presented by the Foundation for Sarcoidosis Research
Create your
podcast in
minutes
It is Free
The Relaxback UK Show
Good Nurse Bad Nurse
On Call With Dr. Anselm Anyoha
The Doctor’s Farmacy with Mark Hyman, M.D.
The Peter Attia Drive