Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
In Episode 29 of the Sarc Fighter podcast, Susie Torres tells the story of how hard it was to determine what was wrong with her. Doctors mistook her illness for many other problems -- once even sending her to a psychiatric hospital.
Note: I first met and interviewed Susie in early 2020 -- pre-pandemic. Susie writes that since we did the interview she has had gastric bypass surgery and lost 100 lbs! She also writes that her sarcoidosis is in remission, but she is still battling another rare disease -- possibly Sjogren’s Syndrome (SHOW-grins), which is is a disorder of your immune system identified by its two most common symptoms — dry eyes and a dry mouth. The condition often accompanies other immune system disorders, such as rheumatoid arthritis and lupus.
Utah Sarcoidosis Support https://www.facebook.com/groups/2028388207424165/
Nourish by Lindsey: https://www.nourishbylindsey.com/
https://www.healthline.com/nutrition/elimination-diet
Meet Lindsey Norenberg https://www.nourishbylindsey.com/about
Leaky Gut https://www.health.harvard.edu/blog/leaky-gut-what-is-it-and-what-does-it-mean-for-you-2017092212451
Just Thrive Probiotics https://justthrivehealth.com/
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
Episode 15 Reg Alexander Needed a New Heart
Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
Episode 13 Angela Frelander talks about how you can help fight Sarcoidosis
Episode 12: Mark Steier sings the song of Sarcoidosis and tells his own sarc story.
Episode 11 Andrea and Reading Wilson -- Founders of the Foundation for Sarcoidosis Research
Episode 10 Kerry Wong Talks about how sarc stole her life
Bonus Podcast: Roundtable discussion on Sarcoidosis Associated Pulmonary Hypertension from Madrid, Spain
Episode 9 COVID-19 & Sarcoidosis: What are the real risks? First data with Dr. Robert Baughman
Episode 8 Patient Bob Gross tells his sarcoidosis story and more on sarc & COVID-19
Episode 7 My Methotrexate issues and Cheryl Bradford tells her sarcoidosis story
Episode 6 The Threat from COVID-19 with Jim Kuhn and Mindy Buchanan
Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity
Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis
Episode 3 Patient Frank Rivera bares his soul.
Episode 2 All About Sarcoidois with Dr. Simon Hart
Episode 1 My Sarcoidosis Story
Sarc Fighter Trailer
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