When we are planning to start a family we get a picture in our head around what it’s going to look like. It very rarely looks like the romanticised picture we create. Sometimes, the reality is as vastly different to that picture.
In this episode Bri shares how her family doesn’t look how she anticipated. Bri and her husband have two children. When they took him to the hospital with wheezing from a virus their suspicions were confirmed. Ari had a genetic condition. After a plethora of testing it was confirmed that he has a very rare form of Muscular Dystrophy and to their knowledge he is the only living person with that form of MD.
Not to be left out, their eldest son was later diagnosed with type one diabetes. They hit the genetic lottery.
Bri shares how the diagnosis impacts their family, struggles with NDIS, juggling therapy and hospital appointments, as well as the absolute joy that their two boys bring to their lives.
It is really easy to get jaded, tired, cranky when life hands you lemon after lemon but Bri is light and relaxed (at the end of a long day at work!). When I asked what her secret is she said she gave up wine and she gives gratitude at the end of each day. Being grateful for the positives she has in her life every day helps refocus her perspective.
In the episode Bri spoke about some resources:
Muscular Dystrophy Support Australia https://www.facebook.com/groups/240404516426752
Muscular Dystrophy WA https://www.mdwa.org.au/
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E26 - Surviving a Childs Suicide - The Hidden World of Women
E25 - Interracial Marriages in 2021 - The Hidden World of Women
E24 - Living as a young widow - The Hidden World of Women
E23 - Recovering from a brain aneurysm and stroke - The Hidden World of Women
E22 - Post Natal Depression Event, My story makes a difference - The Hidden World of Women
E 21 - Surviving a late term miscarriage - The Hidden World of Women
E20 - Living through a Pandemic - The Hidden World of Women
E19 - What even is a Doula? - The Hidden World of Women
E18 - Career Change - The Hidden World of Women
E17 – Clothing as living art - The Hidden World of Women
E16 - Partner in Prison - The Hidden World of Women
E15 - Leaving a violent relationship - The Hidden World of Women
E14 - International Women's Day 2021 Inspire Conference Part 1 - The Hidden World of Women
E13 - Motherhood with Multiples - The Hidden World of Women
E12 - Schooling in Uncertainty - The Hidden World of Women
E11 - Having a hysterectomy - The Hidden World of Women
E10 - Photographing women's bodies - The Hidden World of Women
E09 - Conception via egg donation - The Hidden World of Women
E08 - Postnatal Depression - The Hidden World of Women
E07 - Thriving as a FIFO partner and mother - The Hidden World of Women
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