Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Mindy Buchanan is the Patient Engagement Manager for the Foundation for Sarcoidosis Research. In this episode, she talks about the success of the September virtual summit and how you can participate in the upcoming sarc summit in November.
As you may know, in a typical year, Sarcoidosis Warriors (Sarc Fighters!) have the chance to travel to cities across the United States to attend meetings, listen to speakers and meet one another -- All in an effort to become more familiar with the Sarc struggle. This year, thanks to COVID-19, the summits have become virtual. FSR has worked so hard, to make it so that we can all continue our respective battles with the most support possible!
More info on the November Summit and how to sign up: https://www.stopsarcoidosis.org/patient-summits/
Meet Mindy! https://www.stopsarcoidosis.org/about/staff/
Sarc and Pregnancy, a new study. https://sarcoidosisnews.com/2020/09/10/sarcoidosis-linked-higher-risk-some-pregnancy-complications-swedish-study-shows/
Sarc Merch from FSR https://www.stopsarcoidosis.org/fsr-sarc-store/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
Episode 15 Reg Alexander Needed a New Heart
Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
Episode 13 Angela Frelander talks about how you can help fight Sarcoidosis
Episode 12: Mark Steier sings the song of Sarcoidosis and tells his own sarc story.
Episode 11 Andrea and Reading Wilson -- Founders of the Foundation for Sarcoidosis Research
Episode 10 Kerry Wong Talks about how sarc stole her life
Bonus Podcast: Roundtable discussion on Sarcoidosis Associated Pulmonary Hypertension from Madrid, Spain
Episode 9 COVID-19 & Sarcoidosis: What are the real risks? First data with Dr. Robert Baughman
Episode 8 Patient Bob Gross tells his sarcoidosis story and more on sarc & COVID-19
Episode 7 My Methotrexate issues and Cheryl Bradford tells her sarcoidosis story
Episode 6 The Threat from COVID-19 with Jim Kuhn and Mindy Buchanan
Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity
Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis
Episode 3 Patient Frank Rivera bares his soul.
Episode 2 All About Sarcoidois with Dr. Simon Hart
Episode 1 My Sarcoidosis Story
Sarc Fighter Trailer
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