Episode #057: Joey‘s Song - Music Benefit to Aid in Epilepsy Research - Mike Gomoll

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Episode 057

Joeys Song

 

Joey's Song was started in 2010 following the death of four-year-old Joey Gomoll, who passed one week shy of his fifth birthday. Joey suffered from a rare and debilitating form of epilepsy known as Dravet Syndrome. Dravet's caused persistent seizures which were never able to be controlled through medications leading to severe learning disabilities. While Dravet's robbed Joey of the ability to speak, Joey remained a happy and fun loving child. He was happiest when music was playing, allowing him to hum, drum and sing in his own way. To be present when music was playing meant only one thing, that Joey would soon have you dancing and enjoying the music with him.

 

https://www.joeyssong.org/