Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Andrea Wilson knew she had a problem -- but doctors couldn't figure out what it was. Eventually, they discovered it was sarcoidosis. Despite living in a major city with great healthcare and the insurance to pay for it, Andrea struggled. Eventually, she and her husband, Reading took action - founding the Foundation for Sarcoidosis research.
Listen as they tell the story of growing from a fledgling concept at their kitchen table, to a multi-million dollar foundation that drives research and patient outreach around the world.
It is a true honor to have Andrea and Reading as guests on the Sarc Fighter podcast.
Here is some quick background on the founding of FSR https://www.stopsarcoidosis.org/about/
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
Episode 90 | Mathew Campbell ’s Sarc went from his lungs to his heart. And FSR Crystal Gala highlights
Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
Episode 79a | Royce Robertson is Fighting Sarcoidosis from the seat of his bike!
Episode 79 | Sarc Fighter Royce Robertson bares his sole while looking for a way to help fight Sarcoidosis
Episode 78 | Dr. John Belperio at UCLA has done a deep dive into the state of Sarcoidosis.
Episode 77 | Covid Vaccines and Sarcoidosis: Surprising new research from the University of Illinois Chicago
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
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