Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Andrea Wilson knew she had a problem -- but doctors couldn't figure out what it was. Eventually, they discovered it was sarcoidosis. Despite living in a major city with great healthcare and the insurance to pay for it, Andrea struggled. Eventually, she and her husband, Reading took action - founding the Foundation for Sarcoidosis research.
Listen as they tell the story of growing from a fledgling concept at their kitchen table, to a multi-million dollar foundation that drives research and patient outreach around the world.
It is a true honor to have Andrea and Reading as guests on the Sarc Fighter podcast.
Here is some quick background on the founding of FSR https://www.stopsarcoidosis.org/about/
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
Episode 71 | Andrew Brandt is fighting back - for all of us.
Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
Episode 68 | Profound thoughts from a dying man.
Episode 67 | Kristi Hedge begins her sarcoidosis journey.
Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
Episode 63 | The birds and finding contentedness
Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
Episode 61 | Expectations and Happiness with Sarcoidosis
Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
Episode 59 | Angelica wants to know how her grandmother died.
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
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