Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Andrea Wilson knew she had a problem -- but doctors couldn't figure out what it was. Eventually, they discovered it was sarcoidosis. Despite living in a major city with great healthcare and the insurance to pay for it, Andrea struggled. Eventually, she and her husband, Reading took action - founding the Foundation for Sarcoidosis research.
Listen as they tell the story of growing from a fledgling concept at their kitchen table, to a multi-million dollar foundation that drives research and patient outreach around the world.
It is a true honor to have Andrea and Reading as guests on the Sarc Fighter podcast.
Here is some quick background on the founding of FSR https://www.stopsarcoidosis.org/about/
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
Episode 15 Reg Alexander Needed a New Heart
Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
Episode 13 Angela Frelander talks about how you can help fight Sarcoidosis
Episode 12: Mark Steier sings the song of Sarcoidosis and tells his own sarc story.
Episode 10 Kerry Wong Talks about how sarc stole her life
Bonus Podcast: Roundtable discussion on Sarcoidosis Associated Pulmonary Hypertension from Madrid, Spain
Episode 9 COVID-19 & Sarcoidosis: What are the real risks? First data with Dr. Robert Baughman
Episode 8 Patient Bob Gross tells his sarcoidosis story and more on sarc & COVID-19
Episode 7 My Methotrexate issues and Cheryl Bradford tells her sarcoidosis story
Episode 6 The Threat from COVID-19 with Jim Kuhn and Mindy Buchanan
Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity
Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis
Episode 3 Patient Frank Rivera bares his soul.
Episode 2 All About Sarcoidois with Dr. Simon Hart
Episode 1 My Sarcoidosis Story
Sarc Fighter Trailer
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