E20: Stevens Johnson Syndrome and Toxic Epidermal Necrolysis: Long-term consequences of the acute disease

Dr Sarah Walsh of the EADV Education Committee sits down and speaks with prominent researchers Dr Pauline O'Reilly and Prof. Jean-Pascal Lefaucheur to discuss two previously poorly-explored aspects of SJS/TEN. Prof Lefaucheur gives insights in to the prevalence of chronic skin pain and possible pathomechanisms, and Dr O’Reilly discusses her research in the area of post-traumatic stress disorder and other psychological consequences of this devastating disease, for patients themselves, their families and their care-givers.

 

Articles referenced in this episode can be found in the JEADV:

Patients’, family members’ and healthcare practitioners’ experiences of Stevens–Johnson syndrome and toxic epidermal necrolysis: a qualitative descriptive study using emotional touchpoints

https://www.onlinelibrary.wiley.com/doi/10.1111/jdv.16958

 

Involvement of small‐diameter nerve fibres in long‐term chronic pain after Stevens–Johnson syndrome or toxic epidermal necrolysis. A neurophysiological assessment

https://www.onlinelibrary.wiley.com/doi/10.1111/jdv.16940

 

Chronic pain: a long‐term sequela of epidermal necrolysis (Stevens–Johnson syndrome/toxic epidermal necrolysis) – prevalence, clinical characteristics and risk factors

https://www.onlinelibrary.wiley.com/doi/10.1111/jdv.16891