Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!

 

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🎧 Watch the chat on YouTube 👇🏻

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📖 Chapters

00:00 – Intro

00:56 – Meet Dr Phillip Pearl

01:17 – What keeps you going, as a paediatric neurologist

03:19 – Choosing paediatric neurology

05:06 – Falling in love with neurology

06:25 – Future of metabolic epilepsies

07:30 – Gene therapy breakthroughs

09:44 – SUDEP & risk awareness

11:18 – Depression, mortality, & suicide in epilepsy

11:55 – The intersection of music and epilepsy

12:28 – Conclusion & thanks

 

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