Making an impact in the lives of children with rare diseases

In this episode, we hear from Falak, a mother, wife and research and evaluation manager at Rare Voices Australia (RVA). Falak talks with our host, Simone Dudley about her children, two of whom have rare diseases and how her lived experience has deepened her professional role at RVA.

In this conversation, Falak helps to remind us of the importance of trusting our instincts as we continually build our capacity. She also describes the power of gratitude and how giving back to communities that supported her and her family, created a sense of belonging and purpose.

Download transcript here >>

www.rarevoices.org.au

www.heartkids.org.au

www.eciavic.org.au